PMD Family Support
PMD Family Support
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
  • Annual Conference
    • 2023 Conference Registration
    • 2023 Annual Conference
    • 2022 Annual Conference
    • 2020 & 2021 Annual Conference
    • 2019 Annual Conference
    • 2018 Annual Conference
    • 2017 Annual Conference
    • 2016 Annual Conference
    • 2015 Annual Conference
    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
  • Our Angels
  • Cruise For The Cause
    • 2018 Cruise
  • Fundraisers & Donations
  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
  • Annual Conference
    • 2023 Conference Registration
    • 2023 Annual Conference
    • 2022 Annual Conference
    • 2020 & 2021 Annual Conference
    • 2019 Annual Conference
    • 2018 Annual Conference
    • 2017 Annual Conference
    • 2016 Annual Conference
    • 2015 Annual Conference
    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
  • Our Angels
  • Cruise For The Cause
    • 2018 Cruise
  • Fundraisers & Donations
  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
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Participation is simple and you could potentially help create better future practices for all PMD children. If you would like your child/children to be included all you have to do is submit their IEP(s) and psychoeducational evaluation(s) along with the signed Informed Consent and HIPPA release forms. Those forms can be signed electronically, if you would prefer to do that please fill out the form below and we will email you the necessary information. For those that would prefer to print and/or save a copy they can be downloaded HERE.
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These things can be submitted a number of ways: 
  • Directly through our website using the form below
  • By email: mjcurtin@iu.edu - Subject: PMD Study
  • By fax: Care of Dr. Michelle Curtin - Number: 1-(317)-948-0126
  • By postal Service: Care of Dr. Michelle Curtin, 1002 Wishard Blvd Suite 3120, Indianapolis IN 46202  

Things the team has learned that can help:
  • Many times IEPs and psychoeducational evaluations are double sided, please make sure to include both sides.
  • IEPs and psychoeducational evaluations are two separate documents, both are needed to be included in the study. (Many states might summarize the evaluation information in the IEP, but it is incomplete, others do not include this at all.)
  • Make sure that you read and complete all of the information on both the Informed Consent and the HIPPA Release form. (If sending  IEPs and psychoeducational evaluations for multiple children please keep in mind that you will need to send an Informed Consent and the HIPPA Release form for each child.)​

More details can be found on the consent forms. 

    If you would like to have your child/children included please fill out the information below or submit their information/documentation using one of the other methods listed above.​

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    Max file size: 25MB
    Max file size: 25MB
    Max file size: 25MB
    Max file size: 25MB
Send
If you have any questions please feel free to send us a message using the above form or
​email Dr. Michelle Curtin directly at MJCurtin@IU.edu
Thank you in advance for your participation!
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About Us
Contact Us
PMD Family Support Est. 1990
525 S. Harris Ave.
Indianapolis, IN 46222