The 26th annual PMD Family Support Conference was another huge success! We had 17 families from 12 states with 14 PMD males and 1 PMLD girl. This year we had several families who came in on Wednesday, so, we did a group trip to the Indianapolis Zoo on Thursday. The weather was absolutely perfect for us slightly cooler temperatures and an overcast sky. We had a group dinner at Hard Rock Cafe afterwards. 

We had an unexpected change of plans on Friday when Dr. Walsh had a serious fall at 6am and wasn't able to see patients. But, in true Indy style we made an new plan! Friday evening Dr. Celanie Christensen (Neuro Genetics) and Dr. Grace Hobson (Research Scientist) did a joint presentation on PMD Genetics and the latest research being done. Dr. Steve Dlouhy (Medical and Molecular Genetics) was also present on Friday night, even with short notice he was able to supply the AV equipment we needed. ​

Saturday was the doctors presentations; although Dr. Walsh (Neuro) was unable join us, Dr. Christensen did the Genetics and Neurology portions, Dr. John Stevens (Pulmonary), and Dr. Joseph Croffie (GI) were with us again this year. We also had two new additions this year, Dr. Karen Myung (Ortho) and Dr. Karen Moody (Palliative Care). Dr. Steve Dlouhy and Tony Taylor (Jeremiah Taylor's dad) once again provided our audiovisual equipment. We hope to have the presentations available on the website in the near future. As always, our wonderful volunteers provided child care during the medical presentations. For lunch we had Subway sandwiches compliments of Jeremiah Taylor's Grandma Gee. After lunch Kayleigh Moureau presented Patti Daviau with a very lovely quilt made with a few PMD shirts she was able to get her to part with! Saturday evening we went to Bucca De Beppo's for a group dinner compliments of donations made by others to the PMD Family Support Conference. There was also the annual trip to Hooters for the older guys! We also had a get acquainted/scavenger hunt activity with lots of "getting to know each other" questions and picture opportunities. First place went to JR Chalupa and his team, which included Mom, Anita and family friend Nancy Morris. Ken Tryba and his family, Mom Pam, sister Lorrie, niece Mack and nephews Daniel and Parker took second place. They also had the most pictures. As usual, we had many opportunities for visiting and late night chats.