We're happy to announce that there is some new research starting up now!
Indiana University-Riley Hospital for Children is conducting a study on school evaluations and resources for children with Pelizaeus-Merzbacher disease (PMD) throughout the United States (Protocol 1908479885).
In order to participate your child must be between 3 and 25 years of age and have a diagnosis of PMD. In addition, your child must be receiving or have previously received services from a public or public charter school. Participation will include sending in your child’s psychoeducational testing and Individualized Education Plan.
Thank you for your help and support!
All confidential information including consent forms, your child’s school testing and IEP should be sent to: [email protected]
Want to learn more about the lead researchers? Check out the bios below:
Indiana University-Riley Hospital for Children is conducting a study on school evaluations and resources for children with Pelizaeus-Merzbacher disease (PMD) throughout the United States (Protocol 1908479885).
In order to participate your child must be between 3 and 25 years of age and have a diagnosis of PMD. In addition, your child must be receiving or have previously received services from a public or public charter school. Participation will include sending in your child’s psychoeducational testing and Individualized Education Plan.
Thank you for your help and support!
All confidential information including consent forms, your child’s school testing and IEP should be sent to: [email protected]
Want to learn more about the lead researchers? Check out the bios below:
|
Michelle Curtin, D.O.
Assistant Professor of Pediatrics Department of Pediatrics Division of Child Development Dr. Curtin is a Developmental-Behavioral Pediatrician with special training in behavioral health diagnosis and psychoeducational testing. |
Celanie Christensen, M.D., M.S.
Assistant Professor of Pediatrics & Neurology Department of Pediatrics Division of Developmental Pediatrics Dr. Christensen is a Neurodevelopmental Disabilities Pediatrician with special training in neurological conditions and genetic disorders. |
