PMD Family Support
PMD Family Support
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
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    • 2023 Conference Registration
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    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
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  • Cruise For The Cause
    • 2018 Cruise
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  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
  • Annual Conference
    • 2023 Conference Registration
    • 2023 Annual Conference
    • 2022 Annual Conference
    • 2020 & 2021 Annual Conference
    • 2019 Annual Conference
    • 2018 Annual Conference
    • 2017 Annual Conference
    • 2016 Annual Conference
    • 2015 Annual Conference
    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
  • Our Angels
  • Cruise For The Cause
    • 2018 Cruise
  • Fundraisers & Donations
  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
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We're happy to announce that there is some new research starting up now!

Indiana University-Riley Hospital for Children is conducting a study on school evaluations and resources for children with Pelizaeus-Merzbacher disease (PMD) throughout the United States (Protocol 1908479885).

In order to participate your child must be between 3 and 25 years of age and have a diagnosis of PMD. In addition, your child must be receiving or have previously received services from a public or public charter school. Participation will include sending in your child’s psychoeducational testing and Individualized Education Plan.

Thank you for your help and support!

All confidential information including consent forms, your child’s school testing and IEP should be sent to: mjcurtin@iu.edu

Want to learn more about the lead researchers? Check out the bios below:
Michelle Curtin, D.O.
Assistant Professor of Pediatrics

Department of Pediatrics
​Division of Child Development

Dr. Curtin is a Developmental-Behavioral
Pediatrician with special training in
behavioral health diagnosis and
psychoeducational testing.
Celanie Christensen, M.D., M.S.
Assistant Professor of Pediatrics & Neurology

Department of Pediatrics
Division of Developmental Pediatrics
​
Dr. Christensen is a Neurodevelopmental
Disabilities Pediatrician with special training
in neurological conditions and genetic
disorders.
If you'd like to have your child/children included please click here for information on getting involved.
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PMD Family Support Est. 1990
525 S. Harris Ave.
Indianapolis, IN 46222