Joe Sobieski
Our precious son, Joe, was born in August of 1999. At about 3 weeks old, nystagmus started and that was the first sign that something was not right. As he failed to reach normal developmental milestones, we had him evaluated and the first doctor diagnosed him with athetoid cerebral palsy. We had further testing done and he was clinically diagnosed with PMD duplication around 11 months old. Later, he was tested again and it turned out that he actually had a triplication. We were told that he was 1 of 11 in the world, which made him even more of a special boy.
Joe was the sweetest, most beautiful blue-eyed, blond-haired, silly boy that touched everyone’s heart after only a few moments of meeting him. He was the spoiled younger brother of his two sisters, Carolyn and Samantha, who doted on him lovingly, but did not always let him get his way. Joe had everyone else wrapped around his finger, especially his mom. He loved reading books, especially “Where the Wild Things Are,” and you had to read with silly voices. His favorite movies were anything Disney, but he also loved Madagascar, Scooby Doo, and Beetlejuice. Sometimes we even had to skip to his favorite parts. Joe also loved the TV shows: SpongeBob Squarepants, Phineas and Ferb, and Bubble Guppies, just to name a few.
Our precious son, Joe, was born in August of 1999. At about 3 weeks old, nystagmus started and that was the first sign that something was not right. As he failed to reach normal developmental milestones, we had him evaluated and the first doctor diagnosed him with athetoid cerebral palsy. We had further testing done and he was clinically diagnosed with PMD duplication around 11 months old. Later, he was tested again and it turned out that he actually had a triplication. We were told that he was 1 of 11 in the world, which made him even more of a special boy.
Joe was the sweetest, most beautiful blue-eyed, blond-haired, silly boy that touched everyone’s heart after only a few moments of meeting him. He was the spoiled younger brother of his two sisters, Carolyn and Samantha, who doted on him lovingly, but did not always let him get his way. Joe had everyone else wrapped around his finger, especially his mom. He loved reading books, especially “Where the Wild Things Are,” and you had to read with silly voices. His favorite movies were anything Disney, but he also loved Madagascar, Scooby Doo, and Beetlejuice. Sometimes we even had to skip to his favorite parts. Joe also loved the TV shows: SpongeBob Squarepants, Phineas and Ferb, and Bubble Guppies, just to name a few.
In the summer, Joe loved to go on vacation to Sanibel Island. He loved swimming in the warm water in the Gulf of Mexico, seeing the dolphins, and getting to spend quality time with his family. Joe also enjoyed going to baseball games, hockey games, long walks, and out to eat at Texas Roadhouse. Joe loved going to Indianapolis every summer to the PMD conference where he could hang out with all of the PMD families, doctors, and volunteers.
We were so blessed to have Joe for 15 wonderful years. He gained his angel wings in November of 2014. He brought a light into this world that will never fade. Joe made everyone he met want to be a better person and learn how to just live, love, and laugh. Joe was always such a happy, smiling boy throughout all of his challenges. He had an infectious laugh that brightened our every day. We miss him so much, but know that he is now free of his Earthly burdens and is running and playing with his Grandpas and Nana and all of his PMD angel brothers. We love you so much. Until we meet again, my heart, my love, my Joe.
We were so blessed to have Joe for 15 wonderful years. He gained his angel wings in November of 2014. He brought a light into this world that will never fade. Joe made everyone he met want to be a better person and learn how to just live, love, and laugh. Joe was always such a happy, smiling boy throughout all of his challenges. He had an infectious laugh that brightened our every day. We miss him so much, but know that he is now free of his Earthly burdens and is running and playing with his Grandpas and Nana and all of his PMD angel brothers. We love you so much. Until we meet again, my heart, my love, my Joe.
