PMD Family Support
PMD Family Support
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
  • Annual Conference
    • 2020 Annual Conference
    • 2019 Annual Conference
    • 2018 Annual Conference
    • 2017 Annual Conference
    • 2016 Annual Conference
    • 2015 Annual Conference
    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
  • Our Angels
  • Cruise For The Cause
    • 2018 Cruise
  • Fundraisers & Donations
  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
  • What is PMD?
    • Pelizaeus-Merzbacher Disease (PMD)
    • PMD vs SPG2 and PMLD
  • Newly Diagnosed?
  • Living with PMD
  • Annual Conference
    • 2020 Annual Conference
    • 2019 Annual Conference
    • 2018 Annual Conference
    • 2017 Annual Conference
    • 2016 Annual Conference
    • 2015 Annual Conference
    • 2014 Annual Conference
    • We Attend Because...
    • More Past Conference Photos
  • Family Stories
  • Our Angels
  • Cruise For The Cause
    • 2018 Cruise
  • Fundraisers & Donations
  • Daviau Family Story
  • Research
    • Participate
    • FAQs
  • Links & Downloads
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Brantley Daviau

Brantley was born April 30, 1982 the youngest of three children. He weighed 7 lbs 8 ozs and although his two older brothers were both affected with PMD he was discharged with no obvious symptoms of PMD.
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Within the first couple weeks he begin to develop nystagmus that would come and go. He also didn't have a strong suck or cry but nothing that we found extremely alarming. We as a family did come to the the conclusion that he was affected well before the doctor's were ready to make a diagnosis though. In addition to his two older brothers that were affected there were several generations of PMD in our family so we knew what to look for. At the time Brantley was born there were no genetic tests to confirm the diagnosis of PMD, however, he was officially diagnosed at about 4 months.

Brantley had a sweet angelic face and gentle disposition most of the time. He was six years younger than his brother Adam and nine years younger than his brother Georgie. Since they were both in school when he was born he had lots of one on one time with Mom. As the youngest he was just a little spoiled and was affectionately nicknamed Brat-ley! At meal times with his brothers he always thought he should be first and got every other bite. He quickly tired of warmed bottles, he liked his milk ice cold and chocolate. He refused it if it got room temperature. Brantley loved watching television and would screech if anyone dared walk between him and the TV. He really enjoyed the weather radar for some reason and would watch it endlessly.

At almost three Brantley was just beginning to develop his own unique personality. He passed away March 24, 1985, one month before his third birthday. He brought us great joy and like his brothers taught us many lessons about life and love.

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About Us
Contact Us
PMD Family Support Est. 1990
525 S. Harris Ave.
Indianapolis, IN 46222